Photos and video with hashtag #tracheoesophagealfistula

#tracheoesophagealfistula

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- Just look at this sweet little baby boy of mine! 😍❀He has come so VERY far and has overcome mountains in his short little life! He's covered in scars that document his journey and his g-tube is a daily reminder of his feeding/drinking difficulties. I've thought long and hard wondering what the difference would have been in knowing his EA/TEF diagnosis before birth. I've come to the conclusion that it would NOT have changed anything for him medically. It most likely would have changed his beginning in the fact that he would have been delivered at the hospital with the NICU. Maybe we would have met the surgeon to discuss his surgery before he was born or maybe not. I think for me as his momma.... I'm still not sure if I would have wanted to know prior to his birth. I know me and Im certain I would have been a total wreck with worry. I just wonder if Doctors have gone back to his later Ultrasounds to see if they possibly missed it. His journey has taught me so much. Hawkinz Greene is tougher than I could have ever imagined a little baby to be and I'm so thankful I get to be this amazing little boys momma!!!😍😍 #hawkinzgreene #babyboy #bathtime #gtube #tubie #tubiebaby #esophagealatresia #tracheoesophagealfistula #tracheomalacia #nicugrad #onetoughbaby #thesharpcrew #bigfamiliesrock
- Just look at this sweet little baby boy of mine! 😍❀He has come so VERY far and has overcome mountains in his short little life! He& #39;s covered in scars that document his journey and his g-tube is a daily reminder of his feeding/drinking difficulties. I& #39;ve thought long and hard wondering what the difference would have been in knowing his EA/TEF diagnosis before birth. I& #39;ve come to the conclusion that it would NOT have changed anything for him medically. It most likely would have changed his beginning in the fact that he would have been delivered at the hospital with the NICU. Maybe we would have met the surgeon to discuss his surgery before he was born or maybe not. I think for me as his momma.... I& #39;m still not sure if I would have wanted to know prior to his birth. I know me and Im certain I would have been a total wreck with worry. I just wonder if Doctors have gone back to his later Ultrasounds to see if they possibly missed it. His journey has taught me so much. Hawkinz Greene is tougher than I could have ever imagined a little baby to be and I& #39;m so thankful I get to be this amazing little boys momma!!!😍😍 #hawkinzgreene #babyboy #bathtime #gtube #tubie #tubiebaby #esophagealatresia #tracheoesophagealfistula #tracheomalacia #nicugrad #onetoughbaby #thesharpcrew #bigfamiliesrock
- Just look at this sweet little baby boy of mine! 😍❀He has come so VERY far and has overcome mountains in his short little life! He's covered in scars that document his journey and his g-tube is a daily reminder of his feeding/drinking difficulties. I've thought long and hard wondering what the difference would have been in knowing his EA/TEF diagnosis before birth. I've come to the conclusion that it would NOT have changed anything for him medically. It most likely would have changed his beginning in the fact that he would have been delivered at the hospital with the NICU. Maybe we would have met the surgeon to discuss his surgery before he was born or maybe not. I think for me as his momma.... I'm still not sure if I would have wanted to know prior to his birth. I know me and Im certain I would have been a total wreck with worry. I just wonder if Doctors have gone back to his later Ultrasounds to see if they possibly missed it. His journey has taught me so much. Hawkinz Greene is tougher than I could have ever imagined a little baby to be and I'm so thankful I get to be this amazing little boys momma!!!😍😍 #hawkinzgreene #babyboy #bathtime #gtube #tubie #tubiebaby #esophagealatresia #tracheoesophagealfistula #tracheomalacia #nicugrad #onetoughbaby #thesharpcrew #bigfamiliesrock
- The strongest little people I know are Tofflings πŸ’œ . . . . . . #babyboy #siblings #momof4 #cm_siblings #momtogs #pixel_kids #simplychildren #momwithcameras #candidchildhood #magicofchildhood #siblinghoodlove #umh_kids #uniteinmotherhood #instababy #littleandbrave #motherhood #our_mother #momtogs #momblogger #motherhood #familylife #dearphotographer #childhoodunpluged #momblogger #momvlogger #allaboutbaby #congenitalheartdefect #spring #vacterl #tracheoesophagealfistula
- The strongest little people I know are Tofflings πŸ’œ . . . . . . #babyboy #siblings #momof4 #cm_siblings #momtogs #pixel_kids #simplychildren #momwithcameras #candidchildhood #magicofchildhood #siblinghoodlove #umh_kids #uniteinmotherhood #instababy #littleandbrave #motherhood #our_mother #momtogs #momblogger #motherhood #familylife #dearphotographer #childhoodunpluged #momblogger #momvlogger #allaboutbaby #congenitalheartdefect #spring #vacterl #tracheoesophagealfistula
- Tube feeding made just a little bit easier with this cute onesie from @starberrykids ⭐️⭐️⭐️Hawkinz has worn this for many months!! It was HUGE on him when he first got it and now he's needing the next size up. Check out his legs that are finally filling out!!😍We love this little onesie and he wears it way more than typical onesies... they tend to kink his tube more when wearing them since the tube needs to go out by his leg. I just love sharing some of the little things that make tube life easier... and adds a little to the cuteness factor!😍 #hawkinzgreene #thesharpcrew #tubie #tubiebaby #gtube #tracheomalacia #tracheoesophagealfistula #esophagealatresia #bigfamiliesrock #baby18 #babyboy
- Tube feeding made just a little bit easier with this cute onesie from @starberrykids ⭐️⭐️⭐️Hawkinz has worn this for many months!! It was HUGE on him when he first got it and now he& #39;s needing the next size up. Check out his legs that are finally filling out!!😍We love this little onesie and he wears it way more than typical onesies... they tend to kink his tube more when wearing them since the tube needs to go out by his leg. I just love sharing some of the little things that make tube life easier... and adds a little to the cuteness factor!😍 #hawkinzgreene #thesharpcrew #tubie #tubiebaby #gtube #tracheomalacia #tracheoesophagealfistula #esophagealatresia #bigfamiliesrock #baby18 #babyboy
- Tube feeding made just a little bit easier with this cute onesie from @starberrykids ⭐️⭐️⭐️Hawkinz has worn this for many months!! It was HUGE on him when he first got it and now he's needing the next size up. Check out his legs that are finally filling out!!😍We love this little onesie and he wears it way more than typical onesies... they tend to kink his tube more when wearing them since the tube needs to go out by his leg. I just love sharing some of the little things that make tube life easier... and adds a little to the cuteness factor!😍 #hawkinzgreene #thesharpcrew #tubie #tubiebaby #gtube #tracheomalacia #tracheoesophagealfistula #esophagealatresia #bigfamiliesrock #baby18 #babyboy
- Yesterday's lounge shopping with Hawkinz Greene! I don't usually put in in a shopping cart due to germs after all he's been through. I could count on 1 hand how many times he's actually been in a cart and he's 17 months old! He's usually in the Ergo or when he was younger... the solly wrap. I love him facing me all snuggled but since getting his g-tube he ends up emptying his entire stomach all over me! He's done that far too many times now. So I've found that front facing in the Ergo 360 does not do this to him. Anyone else with a tubie experience this too or is it just a Hawkinz thing? #hawkinzgreene #tubie #tubiebaby #gtube #loungeshopping #tracheoesophagealfistula #tracheomalacia #esophagealatresia #thesharpcrew #17monthsold #babyboy #bigfamiliesrock
- Yesterday& #39;s lounge shopping with Hawkinz Greene! I don& #39;t usually put in in a shopping cart due to germs after all he& #39;s been through. I could count on 1 hand how many times he& #39;s actually been in a cart and he& #39;s 17 months old! He& #39;s usually in the Ergo or when he was younger... the solly wrap. I love him facing me all snuggled but since getting his g-tube he ends up emptying his entire stomach all over me! He& #39;s done that far too many times now. So I& #39;ve found that front facing in the Ergo 360 does not do this to him. Anyone else with a tubie experience this too or is it just a Hawkinz thing? #hawkinzgreene #tubie #tubiebaby #gtube #loungeshopping #tracheoesophagealfistula #tracheomalacia #esophagealatresia #thesharpcrew #17monthsold #babyboy #bigfamiliesrock
- Yesterday's lounge shopping with Hawkinz Greene! I don't usually put in in a shopping cart due to germs after all he's been through. I could count on 1 hand how many times he's actually been in a cart and he's 17 months old! He's usually in the Ergo or when he was younger... the solly wrap. I love him facing me all snuggled but since getting his g-tube he ends up emptying his entire stomach all over me! He's done that far too many times now. So I've found that front facing in the Ergo 360 does not do this to him. Anyone else with a tubie experience this too or is it just a Hawkinz thing? #hawkinzgreene #tubie #tubiebaby #gtube #loungeshopping #tracheoesophagealfistula #tracheomalacia #esophagealatresia #thesharpcrew #17monthsold #babyboy #bigfamiliesrock
- This bright little rainbow and raindrops set is actually supposed to be pajamas! It's far too cute so Hawkinz is wearing them as clothes during the day. I'm betting he will sleep at some point in them so that counts right?? Be sure to swipe to see all the Hawkinz Greene cuteness!!🌈🌈🌈#hawkinzgreene #rainbowbaby #rainbow #raindrops #comfyclothes #esophagealatresia #tracheomalacia #tracheoesophagealfistula #tubiebaby #tubie #thesharpcrew #bigfamiliesrock #baby18 #babygoesretro
- This bright little rainbow and raindrops set is actually supposed to be pajamas! It& #39;s far too cute so Hawkinz is wearing them as clothes during the day. I& #39;m betting he will sleep at some point in them so that counts right?? Be sure to swipe to see all the Hawkinz Greene cuteness!!🌈🌈🌠#hawkinzgreene #rainbowbaby #rainbow #raindrops #comfyclothes #esophagealatresia #tracheomalacia #tracheoesophagealfistula #tubiebaby #tubie #thesharpcrew #bigfamiliesrock #baby18 #babygoesretro
- This bright little rainbow and raindrops set is actually supposed to be pajamas! It's far too cute so Hawkinz is wearing them as clothes during the day. I'm betting he will sleep at some point in them so that counts right?? Be sure to swipe to see all the Hawkinz Greene cuteness!!🌈🌈🌈#hawkinzgreene #rainbowbaby #rainbow #raindrops #comfyclothes #esophagealatresia #tracheomalacia #tracheoesophagealfistula #tubiebaby #tubie #thesharpcrew #bigfamiliesrock #baby18 #babygoesretro
- If I had a dollar for every time someone said I don't know how you do it and the truth is somedays, I don't know how I do it. Being a parent I feel like is he most incredible and gut wrenching experience ever. Then if you have added circumstances to being a parent, it tests every part of you in ways you can't even begin to explain and don't fully understand until you are in that position. I'm so grateful for this little man for all he's taught me and helped me as a person. #coyboy #toughcookie #tracheoesophagealfistula #primarychildrenshospital #gingerbaby #lovehim #sleepyhead #recovery
- If I had a dollar for every time someone said I don& #39;t know how you do it and the truth is somedays, I don& #39;t know how I do it. Being a parent I feel like is he most incredible and gut wrenching experience ever. Then if you have added circumstances to being a parent, it tests every part of you in ways you can& #39;t even begin to explain and don& #39;t fully understand until you are in that position. I& #39;m so grateful for this little man for all he& #39;s taught me and helped me as a person. #coyboy #toughcookie #tracheoesophagealfistula #primarychildrenshospital #gingerbaby #lovehim #sleepyhead #recovery
- If I had a dollar for every time someone said I don't know how you do it and the truth is somedays, I don't know how I do it. Being a parent I feel like is he most incredible and gut wrenching experience ever. Then if you have added circumstances to being a parent, it tests every part of you in ways you can't even begin to explain and don't fully understand until you are in that position. I'm so grateful for this little man for all he's taught me and helped me as a person. #coyboy #toughcookie #tracheoesophagealfistula #primarychildrenshospital #gingerbaby #lovehim #sleepyhead #recovery

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